RESOURCES
& Resourcefulness
This section offers a number of resources that I refer to in my research:
1) Information from a number of organizations, and
2) Definitions used in disability research.
1) Information from a number of organizations, and
2) Definitions used in disability research.
ORGANIZATIONS
1. D . J. Brown’s book, The Meaning of Careful. “Dr. D J Brownʼs innovative guide to patient and staff centered transformation in the healthcare sector –The Meaning of Careful – addresses the pressing need to improve both patient safety and cost efficiencies while, at the same time, nurturing staff morale and improving the patient experience.” This is a free e-book.
2. Ten Guiding Principles for Person-Centered Care I use these principles in my work. Chris MacDonell at CARF.org designed it. I use these 10 principles of PERSON CENTERED CARE in my research. These are provided by the Commission of Accreditation of Rehabilitation Facilities (CARF)
3. Institute for Healthcare Improvement (in collaboration with the National Institute for Children's Health Quality and the Institute for Patient- and Family-Centered Care) Cambridge, MA, USA. “This self-assessment tool allows organizations to understand the range and breadth of elements of patient- and family-centered care and to assess where they are against the leading edge of practice. Use this self-assessment tool to assess how your organization is performing in relation to specific components of patient- and family-centered care, or as a basis for conversations about patient-centeredness in the organization.
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4. Client-Centered Practice in Spinal Cord Injury Rehabilitation: A Field Guide
I developed this Field Guide for allied health professionals in spinal cord injury rehabilitation based on empirical research funded by the National Institute on Disability, Independent Living, and Rehabilitation Research NIDILRR. You can download it here for free. This field guide is sponsored by the Commission on Accreditation of Rehabilitation Facilities (CARF.org) 
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5. Patient-/Resident-Centered Designation Program was created by Planetree to recognize healthcare providers around the world that have embraced and implemented patient-/resident-centered care in a comprehensive manner. This approach to care is characterized by providers partnering with patients/residents and their family members to identify and satisfy the full range of their needs and preferences. In addition to improving the patient/resident experience, patient-/resident-centered organizations also focus on supporting the professional and personal aspirations of their staff members, who can more effectively care for patients and residents if they are cared for themselves.”
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6. Patient-Centered Care Improvement Guide. Frampton S, Guastello S, Brady C, Hale M, Horowitz S, Bennett Smith S, Stone S. Derby, Connecticut: Planetree; October 2008. “This Guide is designed as a practical resource for health care organizations that are striving to become more patient-centered. It contains best practices and practical implementation tools contributed by hospitals from across the United States. The Self-Assessment Tool can help identify and prioritize opportunities for introducing patient-centered approaches into your organization.”
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7. Registered Nurses’ Association of Ontario (RNAO) “The Person-and Family-Centred Care best practice guideline can be used to enhance the quality of partnerships between health-care providers with individuals accessing care, ultimately improving clinical outcomes.”
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8. Recovery Coaching or Health Coaching in Hampshire United Kingdom: Patient, carer and staff feedback often tell us that service users and carers are frequently disempowered by acute care provision, environments and attitudes. It is a busy environment and can lead to a passive delivery of care across staff groups in a manner that might be debilitating to patient groups, building dependency and reducing their independence.
Hampshire Hospitals NHS Foundation Trust aimed to address this issue by developing a way that they could become partners with their patients (in this paper, with inpatients in acute elderly care rehabilitation). They developed the concept of "recovery coaching" and designed a training intervention to achieve "coaching conversations" between staff and patients.
Hampshire Hospitals NHS Foundation Trust aimed to address this issue by developing a way that they could become partners with their patients (in this paper, with inpatients in acute elderly care rehabilitation). They developed the concept of "recovery coaching" and designed a training intervention to achieve "coaching conversations" between staff and patients.
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The BMJ is a weekly peer-reviewed medical trade journal, published by the trade union the British Medical Association. The BMJ has editorial freedom from the BMA. It is one of the world's oldest general medical journals.
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Please click on the above BMJ logo for a PDF of the article and supplementary material. Thank you.
Abstract
Our patient, carer, and staff feedback clearly tells us that elderly patients are frequently disempowered by acute care provision, environments, and attitudes. This debilitates individuals mentally and physically, reducing their independent functioning, and may mean that they require prolonged care or are unfit to return home.
We developed the concept of "recovery coaching" to support acute inpatient elderly care rehabilitation. We designed a training intervention to achieve "coaching conversations" between our staff and our patients.
Data were collected from 46 participants; 22 in the pre-intervention stage and 24 in the post-intervention stage. For the post-intervention patients, mean scores indicated that there was slightly higher increase in the patient’s independence in terms of their Barthel (ADL) scores and that they reported higher feelings of self-efficacy. For this patient group it was also found that more returned home with the same level of care as on their admission, and that fewer patients required residential care placements at discharge.
This innovative intervention allowed us to challenge the fundamental basis of “I do it for you” to “I will do it with you”, allowing the patient to become an integral partner in their health care.
This is an open-access article distributed under the terms of the Creative Commons Attribution Non-commercial License, which permits use, distribution, and reproduction in any medium, provided the original work is properly cited, the use is non commercial and is otherwise in compliance with the license.
bmjopenquality.bmj.com/content/3/1/u205646.w2316
Our patient, carer, and staff feedback clearly tells us that elderly patients are frequently disempowered by acute care provision, environments, and attitudes. This debilitates individuals mentally and physically, reducing their independent functioning, and may mean that they require prolonged care or are unfit to return home.
We developed the concept of "recovery coaching" to support acute inpatient elderly care rehabilitation. We designed a training intervention to achieve "coaching conversations" between our staff and our patients.
Data were collected from 46 participants; 22 in the pre-intervention stage and 24 in the post-intervention stage. For the post-intervention patients, mean scores indicated that there was slightly higher increase in the patient’s independence in terms of their Barthel (ADL) scores and that they reported higher feelings of self-efficacy. For this patient group it was also found that more returned home with the same level of care as on their admission, and that fewer patients required residential care placements at discharge.
This innovative intervention allowed us to challenge the fundamental basis of “I do it for you” to “I will do it with you”, allowing the patient to become an integral partner in their health care.
This is an open-access article distributed under the terms of the Creative Commons Attribution Non-commercial License, which permits use, distribution, and reproduction in any medium, provided the original work is properly cited, the use is non commercial and is otherwise in compliance with the license.
bmjopenquality.bmj.com/content/3/1/u205646.w2316
9. Schwartz Rounds: A Schwartz round is typically a monthly meeting at which healthcare professionals consider the caring and human dimensions of their work. The focus is on the health professionals themselves, allowing staff from all disciplines to consider their experience of providing care – especially any challenging emotional or social issues. The purpose of the Rounds is not to solve problems, but to explore the human and psychological aspects of the experience of delivering care and the demands that staff face from day to day.
The Round, named after Kenneth Schwartz, a Boston-based lawyer who died of lung cancer in his forties. Before he died, he wrote movingly about the positive impact of receiving compassionate care and described how it “made the unbearable bearable”, and at the same time he recognized the emotional cost to staff this involves. By creating safe space for reflection, Schwartz rounds give staff the opportunity to share some of the emotional or psychological aspects of their work that that may otherwise build up, causing stress and anxiety and impeding their ability to deliver compassionate.
Today, supported by the Schwartz Center for Compassionate Healthcare, the approach is used in more than 300 organizations in the United States. Schwartz Rounds began in the UK in 2009 with two one year pilots, and are now run by the Point of Care Foundation. Setting up and running Schwartz Centre Rounds – a practical handbook.
The Round, named after Kenneth Schwartz, a Boston-based lawyer who died of lung cancer in his forties. Before he died, he wrote movingly about the positive impact of receiving compassionate care and described how it “made the unbearable bearable”, and at the same time he recognized the emotional cost to staff this involves. By creating safe space for reflection, Schwartz rounds give staff the opportunity to share some of the emotional or psychological aspects of their work that that may otherwise build up, causing stress and anxiety and impeding their ability to deliver compassionate.
Today, supported by the Schwartz Center for Compassionate Healthcare, the approach is used in more than 300 organizations in the United States. Schwartz Rounds began in the UK in 2009 with two one year pilots, and are now run by the Point of Care Foundation. Setting up and running Schwartz Centre Rounds – a practical handbook.
10. Reassembled, Slightly Askew This is a performance that can be used in medical training. "Reassembled, Slightly Askew" is an autobiographical, audio-based artwork about Shannon’s experience of falling critically ill with a rare brain infection and her journey of rehabilitation with an acquired brain injury. Audience members experience Reassembled... individually, listening to the audio via headphones, while lying on a hospital bed. The audio technology makes the sound three-dimensional, causing listeners to feel they are inside Shannon’s head, viscerally experiencing her descent into coma, brain surgeries, early days in the hospital, and re-integration into the world with a hidden disability. It is a new kind of storytelling, never done before about this topic, that places the listener safely in the first-person perspective to increase empathy and understanding--it's one step better than walking in someone's shoes, it's living in someone else's head."
11. Shepherd Center patient education Shepherd Center is a world-renowned center for neurological and neuromuscular research. Research studies are conducted in collaboration with leading experts at other hospitals, research centers, medical schools and universities around the world.
Shepherd Center's research activities primarily focus on spinal cord injury, brain injury, multiple sclerosis and neuromuscular disorders.
Shepherd Center aims to develop, refine and evaluate new treatments, drugs, surgical techniques, diagnostic tools and therapeutic interventions. Shepherd Center also works to improve the effectiveness and cost-effectiveness of clinical services, as well as document the long-term effectiveness and benefits of rehabilitation to improve patient outcomes.
Shepherd Center's research activities primarily focus on spinal cord injury, brain injury, multiple sclerosis and neuromuscular disorders.
Shepherd Center aims to develop, refine and evaluate new treatments, drugs, surgical techniques, diagnostic tools and therapeutic interventions. Shepherd Center also works to improve the effectiveness and cost-effectiveness of clinical services, as well as document the long-term effectiveness and benefits of rehabilitation to improve patient outcomes.
DEFINITIONS
Terms Defined
