Christina Papadimitriou P.h.D.
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RESOURCES

& Resourcefulness

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This section offers a number of resources used in the sociology of disabilities research:

Information from multinational organizations

Definitions used in disability research

ORGANIZATIONS

DEFINITIONS


INFORMATION FROM ELEVEN ORGANIZATIONS:

 D. J. Brown’s book, The Meaning of Careful.  “Dr. D J Brownʼs innovative guide to patient and staff centered transformation in the healthcare sector –The Meaning of Careful – addresses the pressing need to improve both patient safety and cost efficiencies while, at the same time, nurturing staff morale and improving the patient experience.” This is a free e-book.
The Meaning of Careful

 10 Guiding Principles for Person-Centered Care I use these principles in my work. Chris MacDonell at CARF.org designed it. 
Person-Centered Care

Institute for Healthcare Improvement (in collaboration with the National Institute for Children's Health Quality and the Institute for Patient- and Family-Centered Care) Cambridge, MA, USA. “This self-assessment tool allows organizations to understand the range and breadth of elements of patient- and family-centered care and to assess where they are against the leading edge of practice. Use this self-assessment tool to assess how your organization is performing in relation to specific components of patient- and family-centered care, or as a basis for conversations about patient-centeredness in the organization.
Patient- and Family-Centered Care Organizational Self-Assessment Tool

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Client-Centered Practice in Spinal Cord Injury Rehabilitation: A Field Guide 
I developed this Field Guide for allied health professionals in spinal cord injury rehabilitation based on empirical research funded by the National Institute on Disability, Independent Living, and Rehabilitation Research 
NIDILRR. You can download it here for free. This field guide is sponsored by the Commission on Accreditation of Rehabilitation Facilities (CARF.org)
Client-Centered Practice in Spinal Cord Injury Rehabilitation: A Field Guide
File Size: 4466 kb
File Type: pdf
Download File


Patient-/Resident-Centered Designation Program was created by Planetree to recognize healthcare providers around the world that have embraced and implemented patient-/resident-centered care in a comprehensive manner. This approach to care is characterized by providers partnering with patients/residents and their family members to identify and satisfy the full range of their needs and preferences. In addition to improving the patient/resident experience, patient-/resident-centered organizations also focus on supporting the professional and personal aspirations of their staff members, who can more effectively care for patients and residents if they are cared for themselves.” 
Global Leader in Advancing Person-Centered Care

Patient-Centered Care Improvement Guide. Frampton S, Guastello S, Brady C, Hale M, Horowitz S, Bennett Smith S, Stone S. Derby, Connecticut: Planetree; October 2008.  “This Guide is designed as a practical resource for health care organizations that are striving to become more patient-centered. It contains best practices and practical implementation tools contributed by hospitals from across the United States. The Self-Assessment Tool can help identify and prioritize opportunities for introducing patient-centered approaches into your organization.” ​
Free download of pdf file

Registered Nurses’ Association of Ontario (RNAO) “The Person-and Family-Centred Care best practice guideline can be used to enhance the quality of partnerships between health-care providers with individuals accessing care, ultimately improving clinical outcomes.”
Person-and-Family-Centered Care

Recovery Coaching or Health Coaching in Hampshire UK: Patient, carer and staff feedback often tell us that service users and carers are frequently disempowered by acute care provision, environments and attitudes. It is a busy environment and can lead to a passive delivery of care across staff groups in a manner that might be debilitating to patient groups, building dependency and reducing their independence. 
Hampshire Hospitals NHS Foundation Trust aimed to address this issue by developing a way that they could become partners with their patients (in this paper, with inpatients in acute elderly care rehabilitation). They developed the concept of "recovery coaching" and designed a training intervention to achieve "coaching conversations" between staff and patients.
Recovery Coaching NHS UK

Schwartz Rounds: A Schwartz round is typically a monthly meeting at which healthcare professionals consider the caring and human dimensions of their work. The focus is on the health professionals themselves, allowing staff from all disciplines to consider their experience of providing care – especially any challenging emotional or social issues. The purpose of the Rounds is not to solve problems, but to explore the human and psychological aspects of the experience of delivering care and the demands that staff face from day to day. 
The Round, named after Kenneth Schwartz, a Boston-based lawyer who died of lung cancer in his forties. Before he died, he wrote movingly about the positive impact of receiving compassionate care and described how it “made the unbearable bearable”, and at the same time he recognized the emotional cost to staff this involves. By creating safe space for reflection, Schwartz rounds give staff the opportunity to share some of the emotional or psychological aspects of their work that that may otherwise build up, causing stress and anxiety and impeding their ability to deliver compassionate.
Today, supported by the Schwartz Center for Compassionate Healthcare, the approach is used in more than 300 organizations in the United States. Schwartz Rounds began in the UK in 2009 with two one year pilots, and are now run by the Point of Care Foundation. Setting up and running Schwartz Centre Rounds – a practical handbook.
The schwartz center

This is a performance that can be used in medical training.  "Reassembled, Slightly Askew is an autobiographical, audio-based artwork about Shannon’s experience of falling critically ill with a rare brain infection and her journey of rehabilitation with an acquired brain injury. Audience members experience Reassembled... individually, listening to the audio via headphones, while lying on a hospital bed. The audio technology makes the sound three-dimensional, causing listeners to feel they are inside Shannon’s head, viscerally experiencing her descent into coma, brain surgeries, early days in the hospital, and re-integration into the world with a hidden disability. It is a new kind of storytelling, never done before about this topic, that places the listener safely in the first-person perspective to increase empathy and understanding--it's one step better than walking in someone's shoes, it's living in someone else's head." 
Reassembled, Slightly Askew

Shepherd Center patient education 
shepard center patient education

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© COPYRIGHT 2023 Christina Papadimitriou, Ph.D.   Website by: Copley Creatives
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