The Standardized Process Assessment of Relationship Centered Decision-Making Project
SPARCSdm
I co-lead the SPARCSdm project along with Dr. Trudy Mallinson. We were funded by the Agency for Health Care Research and Quality (AHRQ)
The Advanced Metrics Lab (AML) aims to develop and refine outcome measures for health care, rehabilitation, and community-based services. The lab’s research focuses on better health outcomes measurement and data visualization so providers and consumers can make better treatment decisions, together.
What is the SPARCSdm?This research study seeks to understand how healthcare professionals and care partners make decisions together for persons with high support needs due to cognitive and communication disabilities. This will be done by developing an assessment, Standardized Process Assessment of Relationship-Centered Shared decision-making (SPARCSdm). This assessment will be used within various clinical encounters, care settings, and populations.
Why are we creating the SPARCSdm? Shared decision-making (SDM) is a collaborative process in which patients and healthcare professionals work together to make healthcare decisions informed by science and the patient's values and preferences. The SDM process is unique for patients who cannot advocate for themselves because it involves choices that are recurrent, may not have clear supportive evidence, and are made by care partners who speak for their loved ones and themselves. Currently, available SDM assessments are not designed to capture these complexities. |
Our FocusOur focus is on persons who lack the ability to decide for themselves and communicate their wishes to others. Care partners (i.e. family and informal caregivers) play a critical role in the shared decision-making process since they are representatives in all healthcare encounters including decision-making. They are essential voices in communicating and advocating with healthcare professionals about treatment decisions. But care partners and practitioners struggle to engage in SDM, and our purpose in developing the SPARCSdm is to address these issues. We will recruit from three patient populations: persons in disorders of consciousness, persons with dementia, and children with developmental disabilities.
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A New Process Model for Relationship-Centered Shared Decision-Making
Shared decision-making is a complex and essential process for persons with chronic disabilities who require high levels of support such as those living with disordered consciousness. Many factors shape how shared decision-making unfolds during neurologic inpatient rehabilitation encounters among persons, care partners, and practitioners. We call these encounters "micro-decision environments." We present four levels of analysis that researchers need to consider when studying the process of decision-making in this population & setting.
A picture of our process model for relationship-centered shared decision-making in physical medicine and rehabilitation settings is below.
Here is the full citation for the accompanying scholarly article:
A New Process Model for Relationship-Centered Shared Decision-Making in Physical Medicine and Rehabilitation Settings. Health Expectations/Volume 27, Issue 4/ e14162, WILEY Online Library, August 14, 2024
A picture of our process model for relationship-centered shared decision-making in physical medicine and rehabilitation settings is below.
Here is the full citation for the accompanying scholarly article:
A New Process Model for Relationship-Centered Shared Decision-Making in Physical Medicine and Rehabilitation Settings. Health Expectations/Volume 27, Issue 4/ e14162, WILEY Online Library, August 14, 2024
This figure is a visual representation of the process model for Relationship-Centered Shared Decision-Making in physical medicine and rehabilitation settings.
In the micro-decision environment, there are several interacting levels of analysis: 1) moments of micro-decision making; 2) relational dimensions; 3) roles and relationships; and 4) social forces.
Dr. Christina Papadimitriou
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Dr. Trudy Mallinson
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The Advanced Metrics Lab (AML) is physically located at GW in Washington, D.C. In practice, the lab is an active collaboration among numerous researchers led by Dr. Trudy Mallinson of GW and Dr. Christina Papadimitriou of Oakland University.
AML aims to develop and refine outcome measures for health care, rehabilitation, and community-based services. The lab’s research focuses on better health outcomes measurement and data visualization so providers and consumers can make better treatment decisions, together.
AML aims to develop and refine outcome measures for health care, rehabilitation, and community-based services. The lab’s research focuses on better health outcomes measurement and data visualization so providers and consumers can make better treatment decisions, together.
Dr. Christina Papadimitriou: Professor, Interdisciplinary Health Sciences and Sociology, Oakland University Rochester, Michigan. She is also the Director of Hermeneutic Resources at the Advanced Metrics Lab (AML) School of Medicine and Health Sciences, George Washington University
Washington, D.C.
Dr. Trudy Mallinson: Associate Professor, Department of Clinical Research and Leadership, George Washington University Washington D.C. She is also a Senior Scientist in the Center for Healthcare Innovation and Policy Research and Director of the Advanced Metrics Lab.
Washington, D.C.
Dr. Trudy Mallinson: Associate Professor, Department of Clinical Research and Leadership, George Washington University Washington D.C. She is also a Senior Scientist in the Center for Healthcare Innovation and Policy Research and Director of the Advanced Metrics Lab.